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November 9, 2017 Comments Off

Smoking is the number one risk factor for lung disease in those born with Alpha-1. The European Lung Foundation and the European Respiratory Society describe the benefits of quitting smoking in two excellent diagrams.

November 7, 2017 Comments Off

The Alpha One Foundation is pleased to announce participation in the MRCG-HRB Joint Funding Scheme 2017, a collaboration between the Health Research Board (HRB) and the Medical Research Charities Group (MRCG).  (more…)

September 18, 2017 Comments Off

A new project called "Your Voice Matters; stories to build a better health service" has been launched by the HSE in conjunction with IPPOSI. To improve the health service, the HSE wants to find

September 14, 2017 Comments Off

Can you imagine struggling to breathe… Close your eyes and focus on how you breathe, how you take this basic task for granted, you just do it without thinking about it. It’s really

September 12, 2017 Comments Off

The Annual Alpha-1 Conference for 2017 will take place on Friday October 20th in Marino Institute of Education on Griffith Avenue in Dublin 9. We are delighted to announce this year's special guest

August 10, 2017 Comments Off

Alpha One Foundation calls on Minister to reconsider decision for patients who have no other therapy option -Drug company, CSL Behring, urged not to stop therapy for 21 patients already receiving drug on

July 25, 2017 Comments Off

The Oireachtas Joint Committee on Health met on July 12th to discuss the process for the review and approval of Orphan Drugs.  The Alpha One Foundation represented approximately 60 Alpha-1 patients, at the

June 22, 2017 Comments Off

Want to get EDUCATED? Want to get INVOLVED? The IPPOSI Patient Education Programme is now open for applications. This is a 6-month blended-learning education programme, the first of its kind in Ireland, and is being

May 30, 2017 Comments Off

The Alpha-1 Action Group are holding a protest at the gates of Dáil Éireann, Kildare Street, Dublin 2 tomorrow Wednesday, May 31st at 12.30pm. The protest is to urge the Government to fund

May 25, 2017 Comments Off

The Alpha-1 Action Group are holding a protest at the gates of Dáil Éireann, Kildare Street, Dublin 2 on Wednesday May 31st at 12.30pm.  The protest is to urge the Government to fund the

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