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April 25, 2016 Comments Off

Last August Anne Gormley from Ramelton in Co. Donegal was interviewed on the popular Shaun Doherty Show on local station Highland Radio to talk about her diagnosis of COPD and Alpha-1.  Anne spoke

April 4, 2016 Comments Off

This week is Organ Donor Awareness Week 2016 which runs from April 2nd to 9th.  There are approximately 700 people in Ireland awaiting life-saving heart, lung, liver, kidney and pancreas transplants. Thanks to

March 30, 2016 Comments Off

Have you been diagnosed with alpha-1 antitrypsin deficiency (Alpha-1) recently?  Have you discussed this information with your family?  If you have been diagnosed with Alpha-1 other members of your family could also have

February 24, 2016 Comments Off

The National Rare Diseases Office (NRDO) was established in June 2015 by the Health Services Executive (HSE).  It is staffed by information scientists who have significant experience working with individuals and families affected

February 5, 2016 Comments Off

January 27th marked the launch of the EUPATI Toolbox on Medicines R&D – a massive online resource of over 3000 articles, factsheets, slides, infographics, webinars and videos on topics related to medicines research

February 5, 2016 Comments Off

COPD Support Ireland is a charity set up in 2013 to support all those living with a lung condition called chronic obstructive pulmonary disease (COPD).  COPD  is a term used to include chronic

January 18, 2016 Comments Off

Rare Disease Day takes place every year in February worldwide in order to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.This years Rare Disease

December 21, 2015 Comments Off

In collaboration with Dublin City University Sport (DCU Sport) and MedEx Wellness, the Alpha One Foundation is delighted to announce an exciting new research project which is being co-funded by the Irish Research

November 20, 2015 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday 30th of October. Over 70 Alphas and their family members attended

November 19, 2015 Comments Off

The Alpha One Foundation Christmas Cards for 2015 are now available. They are great value at €5 per pack of 10 cards and include all our contact details as well as a brief

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