April 9, 2015 Comments Off

Alpha-1 Global is hosting the 2015 Alpha-1 Global patient Congress this weekend; 9-11 April in Barga, Italy. Alpha-1 patients from around the world as well as Alpha-1 community leaders, organisations and healthcare professionals will

April 2, 2015 Comments Off

The HSE has stated Ireland’s first National Rare Disease Office is expected to open officially in the second quarter of 2015. The establishment of a National Rare Disease Office (NRDO) was one of

March 27, 2015 Comments Off

Having been diagnosed with Alpha-1 Antitrypsin Deficiency at just six months old,  Colm Costello from Ballinamore, Co.Leitrim was one of the youngest patients to undergo a liver transplant operation in Ireland in May

March 27, 2015 Comments Off

The VHI Women's Mini Marathon is taking place on Monday June 1st in Dublin and as ever we welcome ladies to take part to raise funds and awareness for the Alpha One Foundation!

February 26, 2015 Comments Off

EUPATI is a new European Union training programme designed to help patients become directly involved in the research and development of new medicines. Five Irish patients joined the course in October 2014. The second

February 11, 2015 Comments Off

On March 29, 2004 the Republic of Ireland became the first country in the world to implement a national workplace smoking ban. This legislation was comprehensive, banning smoking in workplaces including restaurants, bars

February 5, 2015 Comments Off

New research suggests e-cigarettes generate toxic chemicals similar to those found in tobacco and may harm the lungs and immune system. In this new study, mice exposed to e-cigarette fumes suffered mild damage

December 12, 2014 Comments Off

Minister for Health Leo Varadkar visited the Alpha One Foundation in Beaumont Hospital on Monday December 1st, to learn about Alpha-1, a genetic condition that can cause lung and liver problems.  Minister Varadkar met

December 2, 2014 Comments Off

The Science Squad on RTE1 on Monday evening, December 1st ran an excellent piece on Alpha-1.  It featured an interview with Professor McElvaney and 2 inspirational Alpha-1 patient stories from Stephen Smith and

November 17, 2014 Comments Off

The Save Your Breath COPD awareness campaign kicks off this week. The campaign, taking place from November 17 to 23, coincides with World COPD Day on Wednesday November 19, and will see a