June 21, 2014 Comments Off

An Easy Guide to Rare Diseases has been produced to increase awareness about the challenges of living with a rare disease and to highlight the priorities that need to be included in the

May 28, 2014 Comments Off

Researchers from the Alpha One Foundation, the Royal College of Surgeons in Ireland and Harvard University have made a major breakthrough in identifying people who have an increased risk of developing COPD (chronic

May 21, 2014 Comments Off

 An article published in The Journal of the American Medical Association earlier this year documents the 'war against tobacco' which has been ongoing for the past 50 years in the US and indeed

May 21, 2014 Comments Off

A new European project called EUPATI is trying to collect the real life experiences of patients who have participated in medicines development and clinical trials. People with Alpha-1 who have participated in clinical

May 21, 2014 Comments Off

The Alpha One Foundation has won a prestigious award for the National Alpha-1 Antitrypsin Deficiency Targeted Detection Programme at the Irish Healthcare Centre Awards held at the Royal Marine Hotel in Dún Laoghaire on

May 20, 2014 Comments Off

The popular online newspaper TheJournal.ie published an excellent article on Alpha-1 last Sunday evening (January 19th). To date the article has attracted over 28,000 views. As well as excellent interviews with Professor McElvaney

May 20, 2014 Comments Off

The HSE's QUIT campaign launched a new TV advert at the beginning of the new year, featuring an emotive message from Gerry Collins from Greystones in Co. Wicklow, who has terminal lung cancer

May 20, 2014 Comments Off

The Irish Lung Health Alliance recently hosted a series of public lectures around the theme of ‘maximising lung health’. The lectures which took place in the Mansion House Dublin on 5th November 2013

May 20, 2014 Comments Off

The Irish Independent published an interview with Alpha-1 patient Stephen Smith on the 2nd of January. After seven unsuccessful calls Stephen finally received a successful double lung transplant in the Mater Hospital, Dublin

May 20, 2014 Comments Off

The Huffington Post in the US interviewed the US Alpha-1 Foundation president & CEO John Walsh as well as Richard Johnson, a finalist for the Betty Jane France Humanitarian Award, about Alpha-1 and

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