April 3, 2021 Comments Off

Around 250,000 of Irish people are carriers of the gene causing Alpha-1 antitrypsin deficiency, a genetic disorder that can affect the lungs, liver and skin and can be deadly if undiagnosed. Kevin Colfer

March 10, 2021 Comments Off

Family and friends of one of the original Alpha-1 warriors Josephine McGuirk completed a unique marathon challenge for the month of February. This goal was to raise awareness of Alpha-1 and to fundraise for

February 18, 2021 Comments Off

The Health Research Board (HRB) of Ireland has announced Gerry McElvaney, Consultant Respiratory Physician at Beaumont Hospital and Professor of Medicine at RCSI University of Medicine and Health Sciences, as the winner of

October 5, 2020 Comments Off

Irish Alpha-1 research published last month in “Thorax”, one of the world's leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions.   (more…)

March 5, 2020 Comments Off

COVID-19 is a new illness that can affect your lungs and airways.  It is caused by a virus called coronavirus. (more…)

February 25, 2020 Comments Off

An Easy Guide to Rare Diseases in Ireland was launched on February 24th in the Mansion House in Dublin.  The guide is designed for the general public, healthcare professionals and the government.  It

February 7, 2020 Comments Off

Alpha-1 Foundation Ireland has been chosen as a global Alpha-1 leader in a new scheme to help other countries as they develop detection, advocacy, and awareness activities.  (more…)

January 24, 2020 Comments Off

Alpha-1 Conference 2019 took place in the Marino Institute of Education in Dublin on Friday, October 25th.  The theme for Conference 2019 was “How Can We Increase Awareness?” and a diverse range of

November 14, 2019 Comments Off

People with COPD are invited to participate in an important new Irish study looking at the impact of COPD on mental health. (more…)

September 19, 2019 Comments Off

Alpha-1 Foundation Ireland attended the Health Research Charities Ireland (HRCI, formerly MRCG) research conference and 21st birthday celebration in Dublin on September 18th. It was a conference to showcase all of the patient-focused

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