Can you imagine struggling to breathe… Close your eyes and focus on how you breathe, how you take this basic task for granted, you just do it without thinking about it. It’s really
Can you imagine struggling to breathe… Close your eyes and focus on how you breathe, how you take this basic task for granted, you just do it without thinking about it. It’s really
The Annual Alpha-1 Conference for 2017 will take place on Friday October 20th in Marino Institute of Education on Griffith Avenue in Dublin 9. We are delighted to announce this year's special guest
Alpha One Foundation calls on Minister to reconsider decision for patients who have no other therapy option -Drug company, CSL Behring, urged not to stop therapy for 21 patients already receiving drug on
The Oireachtas Joint Committee on Health met on July 12th to discuss the process for the review and approval of Orphan Drugs. The Alpha One Foundation represented approximately 60 Alpha-1 patients, at the
Want to get EDUCATED? Want to get INVOLVED? The IPPOSI Patient Education Programme is now open for applications. This is a 6-month blended-learning education programme, the first of its kind in Ireland, and is being
The Alpha-1 Action Group are holding a protest at the gates of Dáil Éireann, Kildare Street, Dublin 2 tomorrow Wednesday, May 31st at 12.30pm. The protest is to urge the Government to fund
The Alpha-1 Action Group are holding a protest at the gates of Dáil Éireann, Kildare Street, Dublin 2 on Wednesday May 31st at 12.30pm. The protest is to urge the Government to fund the
A baby with Alpha-1 who desperately needed a liver transplant found the perfect match when his godmother came through with the lifesaving gift. Eight-month-old Finn O’Sullivan has both Alpha-1 and biliary atresia, a rare
On Tuesday last, May 9th the Alpha-1 Action Group called to the Department of Health to present a letter to the Minister for Health Simon Harris TD. The Alpha One Foundation were asked
Pharmaceutical Company Deadline Looms for 21 Alpha-1 Patients On Life-Changing Respreeza Therapy. With just 30 days to go, the clock is ticking towards a May 31 deadline when pharmaceutical company, CSL Behring, has