March 10, 2021 Comments Off

Family and friends of one of the original Alpha-1 warriors Josephine McGuirk completed a unique marathon challenge for the month of February. This goal was to raise awareness of Alpha-1 and to fundraise for

October 5, 2020 Comments Off

Irish Alpha-1 research published last month in “Thorax”, one of the world's leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions.   (more…)

November 9, 2017 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday, October 20th. Over 60 Alphas and family members attended with plenty

November 9, 2017 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday, October 20th. Over 60 Alphas and family members attended with plenty

April 7, 2009 Comments Off

Not many people have heard of Alpha-1 and it was new to me until about nine years ago when my brother died. (more…)

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