March 10, 2021 Comments Off

Family and friends of one of the original Alpha-1 warriors Josephine McGuirk completed a unique marathon challenge for the month of February. This goal was to raise awareness of Alpha-1 and to fundraise for

October 5, 2020 Comments Off

Irish Alpha-1 research published last month in “Thorax”, one of the world's leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions.   (more…)

July 18, 2019 Comments Off

Congratulations to Carine and Niall Maher who successfully completed the RETRO Cannonball Rally on July 12-13. On their scenic but adrenaline-packed "Drive 4 Alpha-1" they raced from Kinsale to Bunratty to raise awareness

May 24, 2019 Comments Off

In 2005 I started to attend Pilates classes as my back had begun to grumble again and I knew that the exercises would be helpful. I soon realised that when I had to

May 2, 2019 Comments Off

Is your workplace affecting your breathing?  Anyone with a pre-existing lung condition should consider risks that might exist in their workplace.  People with Alpha-1 are at risk of lung disease due to cigarette

April 24, 2018 Comments Off

For the first time in history, the European Alpha-1 Community celebrates an EU Alpha-1 Awareness Day tomorrow 25th April 2018. The goal is to raise further understanding about this genetic condition. AATD is

November 9, 2017 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday, October 20th. Over 60 Alphas and family members attended with plenty

November 9, 2017 Comments Off

The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday, October 20th. Over 60 Alphas and family members attended with plenty

July 25, 2017 Comments Off

The Oireachtas Joint Committee on Health met on July 12th to discuss the process for the review and approval of Orphan Drugs.  The Alpha One Foundation represented approximately 60 Alpha-1 patients, at the

April 7, 2009 Comments Off

Not many people have heard of Alpha-1 and it was new to me until about nine years ago when my brother died. (more…)

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