Alpha-1 Family & Patient Conference The Alpha-1 Patient & Family Conference took place on Saturday 5th October 2024 in the Marino Institute of Education after a break of five years because of the Covid-19 pandemic. Opening the conference, CEO Anne Marie O’Dowd welcomed the audience and the invited speakers.  She...

A new article on MZ type Alpha-1 was published in the prestigious American Journal of Respiratory and Critical Care Medicine in April 2022. This is one of the top journals in the field of lung medicine and has a huge readership around the world. It was first founded in 1917...

Around 250,000 of Irish people are carriers of the gene causing Alpha-1 antitrypsin deficiency, a genetic disorder that can affect the lungs, liver and skin and can be deadly if undiagnosed. Kevin Colfer and his sisters talk about their experiences with the condition, and why they want to increase awareness.

Family and friends of one of the original Alpha-1 warriors Josephine McGuirk completed a unique marathon challenge for the month of February. This goal was to raise awareness of Alpha-1 and to fundraise for Alpha-1 Foundation Ireland.

The Health Research Board (HRB) of Ireland has announced Gerry McElvaney, Consultant Respiratory Physician at Beaumont Hospital and Professor of Medicine at RCSI University of Medicine and Health Sciences, as the winner of the prestigious HRB Impact Award 2021.

Irish Alpha-1 research published last month in “Thorax”, one of the world’s leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions.

COVID-19 is a new illness that can affect your lungs and airways.  It is caused by a virus called coronavirus.

An Easy Guide to Rare Diseases in Ireland was launched on February 24th in the Mansion House in Dublin.  The guide is designed for the general public, healthcare professionals and the government.  It is the culmination of a lot of hard work by people across the rare disease sector, particularly...

Alpha-1 Foundation Ireland has been chosen as a global Alpha-1 leader in a new scheme to help other countries as they develop detection, advocacy, and awareness activities. 

Alpha-1 Conference 2019 took place in the Marino Institute of Education in Dublin on Friday, October 25th.  The theme for Conference 2019 was “How Can We Increase Awareness?” and a diverse range of speakers highlighted this important goal.