September 14, 2017 Comments Off

Can you imagine struggling to breathe… Close your eyes and focus on how you breathe, how you take this basic task for granted, you just do it without thinking about it. It’s really

July 25, 2017 Comments Off

The Oireachtas Joint Committee on Health met on July 12th to discuss the process for the review and approval of Orphan Drugs.  The Alpha One Foundation represented approximately 60 Alpha-1 patients, at the

May 30, 2017 Comments Off

The Alpha-1 Action Group are holding a protest at the gates of Dáil Éireann, Kildare Street, Dublin 2 tomorrow Wednesday, May 31st at 12.30pm. The protest is to urge the Government to fund

May 15, 2017 Comments Off

On Tuesday last, May 9th the Alpha-1 Action Group called to the Department of Health to present a letter to the Minister for Health Simon Harris TD. The Alpha One Foundation were asked

May 2, 2017 Comments Off

Pharmaceutical Company Deadline Looms for 21 Alpha-1 Patients On Life-Changing Respreeza Therapy. With just 30 days to go, the clock is ticking towards a May 31 deadline when pharmaceutical company, CSL Behring, has

April 6, 2017 Comments Off

Alpha-1 patients receiving the life-changing therapy Respreeza protested outside the offices of the Health Service Executive (HSE) at the end of February to demand that the HSE and Minister commit to long-term funding

December 14, 2016 Comments Off

The Alpha One Foundation is calling on the Minister for Health to intervene following a decision by the National Centre for Pharmacoeconomics (NCPE) not to approve funding of the life-changing therapy Respreeza. Respreeza

WP Feedback

Dive straight into the feedback!
Login below and you can start commenting using your own user instantly