Alpha-1 Patient Meeting 2010

May 20, 2014 Alpha1 Admin Comments Off

We are happy to announce the details of our Annual Patient Conference for 2010 which is taking place on Friday, October 8th, at 10.00am in Marino Institute of Education, on Griffith Avenue on the northside of Dublin city centre.

The Institute is easily accessed from the M50 and is situated on Griffith Avenue (see directions on http://www.mie.ie/About-MIE/How-to-Find-Us.aspx).

We encourage all patients and family members to attend this meeting. If you have any enquires please contact Kitty O’Connor at 01-8093871. We have done our best to respond to the inquiries and suggestions of patients in putting this year’s agenda together. We think that it will be an exciting and interesting meeting. We very much welcome partners and other family members. Don’t forget that you do not have any condition in isolation, it affects the whole family. Hopefully, this conference in some small way will improve your family’s understanding of the condition (please bring suitable (casual/comfortable) clothing and footwear for the relaxation workshop).

We look forward to an enthusiastic and well-attended conference and to meeting you all there.

Info Centre

What is Alpha-1 Antitrypsin?

Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.

What is Alpha-1 Antitrypsin Deficiency?

Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).

How Do I Get Tested?

The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie