Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304
Site Developed & Maintained by Ecom-Ireland
2021 © Copyright Alpha-1 Foundation Ireland. All rights reserved.
Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304
Site Developed & Maintained by Ecom-Ireland
2021 © Copyright Alpha-1 Foundation Ireland. All rights reserved.
Alpha-1 Conference 2019 – Save the Date
Alpha-1 Conference 2019 takes place on Friday, October 25th in Marino Institute of Education in Dublin. Special guest is Miriam O’Day, CEO and President of the US Alpha-1 Foundation. The theme for this year is “How can we increase Awareness?” with a special emphasis on the patient voice and its importance. Other speakers include Dr. Derick Mitchell (IPPOSI) and Professor Gerry McElvaney from the National Centre of Expertise for Alpha-1 at Beaumont Hospital.
Alpha-1 is a genetic condition that can cause lung, liver, and skin disease. However, the risk of health problems can be greatly reduced by lifestyle choices such as stopping smoking. There are large numbers affected by the condition in Ireland (more on this here).
If you are affected by Alpha-1, or know someone who is, why not come along on Friday October 25th to learn more about Alpha-1? You will also meet the warm and welcoming Alpha-1 community. Attendance is free and lunch is included. To reserve your place email alpha1@rcsi.ie or call 01-8093871.
AGENDA: Alpha-1 Conference 2019
This Year’s Theme: “How Can We Increase Awareness?”
Venue: Marino Institute of Education, Friday, October 25th 2019
09.30 Registration, Tea and Coffee
10.00 Conference Opening and Keynote Address
Miriam O’Day, CEO and President, Alpha-1 Foundation USA
10.40 The Patient Voice is the Strongest – The IPPOSI Patient Education Programme
Dr. Derick Mitchell – CEO, Irish Platform for Patient Organisations, Science & Industry (IPPOSI)
11.10 Break
11.30 New and Emerging Therapies and Treatments for Alpha-1
Professor Gerry McElvaney, National Centre of Expertise for AATD, Beaumont Hospital
12.10 Alpha-1 Global Conference 2019 – Highlights & Learnings
Niamh Kelly & Aideen Cleary
12.30 The National AATD Targeted Detection Programme & National AATD Registry: An Update
Dr. Tomás Carroll, Alpha-1 Foundation Ireland and RCSI
13.00 Light Lunch Provided in College Cafeteria
14.00 Smoking Cessation and Alpha-1 – Inheriting Risk on the Double
Mansour Alkhunaizi, RCSI Final Year Medical Student
14.15 Answering The SZ Question – An Irish Family Study
Dr. Alessandro Franciosi, Clinical Lecturer and Researcher, RCSI
14.45 Exercise and Alpha-1 – What’s the point?
Eóin Durkan, PhD Student, School of Health and Human Performance, Dublin City University
15.00 The ZZ Family Study – A New Research Study
Dr. Oliver McElvaney, RCSI Researcher
15.15 Closing Remarks.
Info Centre
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie