The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin on Friday, October 20th. Over 60 Alphas and family members attended with plenty
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Smoking is the number one risk factor for lung disease in those born with Alpha-1. The European Lung Foundation and the European Respiratory Society describe the benefits of quitting smoking in two excellent diagrams.
The Oireachtas Joint Committee on Health met on July 12th to discuss the process for the review and approval of Orphan Drugs. The Alpha One Foundation represented approximately 60 Alpha-1 patients, at the
Pharmaceutical Company Deadline Looms for 21 Alpha-1 Patients On Life-Changing Respreeza Therapy. With just 30 days to go, the clock is ticking towards a May 31 deadline when pharmaceutical company, CSL Behring, has
We are delighted to showcase our new educational film on Alpha-1 which was officially launched at the Annual Alpha-1 Conference on October 7th. Funded by an educational grant from the Health Research Board
Last August Anne Gormley from Ramelton in Co. Donegal was interviewed on the popular Shaun Doherty Show on local station Highland Radio to talk about her diagnosis of COPD and Alpha-1. Anne spoke
Have you been diagnosed with alpha-1 antitrypsin deficiency (Alpha-1) recently? Have you discussed this information with your family? If you have been diagnosed with Alpha-1 other members of your family could also have
A new smartphone app was recently launched to provide credible factual information about a range of illnesses to people in Ireland. (more…)
A new website was launched recently aiming to increase awareness and understanding of chronic disease in Ireland. The website, www.chronic-disease.ie, contains information and statistics on long term diseases including Atrial Fibrillation, Diabetes, Chronic
COPD Support Ireland is a charity set up in 2013 to support all those living with a lung condition called chronic obstructive pulmonary disease (COPD). COPD is a term used to include chronic
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