Partnerships

June 12, 2014 Alpha1 Admin Comments Off

The phrase “together we are stronger” is especially apt in the context of Alpha-1. Alpha-1 Foundation Ireland works closely with the following organisations to advocate for Irish individuals with Alpha-1, as well as those affected by lung disease and rare diseases:

The Medical Research Charities Group (MRCG )
Irish Platform for Patient Organisations, Science and Industry (IPPOSI)
The Irish Thoracic Society (ITS)
COPD Support Ireland (www.copd.ie)
Irish Donor Network (IDN)
The Irish Lung Health Alliance
European Organisation for Rare Diseases (EURORDIS)
Department of Health and Children (click here for speech by the Minister for Health at the opening of the Alpha One Suite in 2004)
The Health Service Executive (HSE)
The Alpha-1 Foundation (USA)

Info Centre

What is Alpha-1 Antitrypsin?

Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.

What is Alpha-1 Antitrypsin Deficiency?

Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).

How Do I Get Tested?

The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie

Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304

Site Developed & Maintained by Ecom-Ireland