The annual Alpha One Foundation Chopin Award to highlight Alpha-1 and lung disease research will take place in The Oak Room of the Mansion House, Dublin, on Thursday, November 17th at 7.00 pm.

This year the Alpha One Foundation is celebrating its tenth anniversary by inviting a student in the final year of a music degree to compete for the Alpha One Foundation Chopin Bursary. Four students from Trinity College Dublin, Dublin Institute of Technology, University College Dublin and Maynooth University will compete for this bursary and each student will perform a Chopin piece.

As you may be aware Frédéric Chopin suffered from chronic respiratory disease, probably Alpha-1, during his short but very productive life. The Alpha One Foundation wishes to celebrate his life and draw attention to research into respiratory disease, particularly alpha-1 antitrypsin deficiency (also known as hereditary emphysema).   We hope to have representatives from the Polish and French embassies to commemorate his close ties with both countries.

The Lord Mayor of Dublin Councillor Andrew Montague has kindly invited us to use his residence in the Mansion House for the occasion. We gratefully acknowledge his generosity. The evening will commence at 7.00 pm with a wine reception and conclude at 9.30 pm. Tickets for the event cost €10. To secure your invitations please contact Kitty O'Connor at 01-8093871 or email This email address is being protected from spambots. You need JavaScript enabled to view it..

The Alpha One Patient Meeting 2011 will take place in The Marino Institute of Education on Griffith Avenue Dublin on Friday 7th October. Invitations have been sent out, if you didn't receive one and would like to attend please contact us via email (This email address is being protected from spambots. You need JavaScript enabled to view it.) or phone (01-8093871). All are welcome.

Alpha-1 Patient Conference Friday October 7th 2011

Full agenda available below.

09.30 Registration, Tea and Coffee

10.00 Prevalence of Alpha-1 in Ireland
     Dr Tomas Carroll, Alpha One Foundation

10.30 Adherence in Chronic Diseases
         Dr Frank Doyle, Lecturer in Psychology, RCSI

     
11.00 Alpha-1 Developments and Children diagnosed with Alpha-1
          Prof N.G. McElvaney, Respiratory Consultant, Beaumont Hospital

11.30 Citizen Information Services
          Cristina Santamaria, Development Manager, Northside Citizen Information  

12.00 Patient Empowerment
          Angela McBride, Director of Development, Alpha-1 Foundation, US

12.45 Light Lunch Provided in College Cafeteria
 Representatives from the following groups will be present during this interval

           Health Promotion Unit Beaumont Hospital,
           Children’s Liver Disease Ireland
           Asthma Society of Ireland
           Citizen Information Services  

14.00 Pulmonary Rehabilitation/Breath Smart Programme
         Dr Noel McCaffery, Medical Director, Breath Smart Programme, DCU

14.40 Alpha-1 Support Group Meeting

16.00 Close


 

The Patients' Meeting  will be held in the Marino Institute of Education. Please see location and directions below:

Location: 

Marino Institute of Education,
Griffith Avenue, Dublin 9 Ireland
t: +353 1 805 7700  

Directions from the City Centre
From the top of O Connell Street, drive past Parnell Square to the Drumcondra Road.

Follow the signs to the airport.
After the Skylon Hotel, take a right at the next large crossroads; this brings you down Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.
 
Directions from the M50
After the West link toll Booth on the M50 drive towards the Airport.

Take a right exit towards the City centre from Junction 3 at the M50.
Drive the MI to the N1 towards the City Centre.
After the Regency Hotel take a left onto Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.
 
Directions from the Airport
Exit the Airport and drive on the MI to the N1 towards the City Centre.

After the Regency Hotel take a left onto Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.


Car Parking Complimentary Car Parking Facilities are available in the grounds for up to 150 cars.

 

What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test. 
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha One Foundation provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. For more details ring 01-8093871 or email alpha1@rcsi.ie.