The Federation of European Academies of Medicine (FEAM) is an umbrella organisation that brings together the national academies of thirteen European member states. The Federation recently held their Spring Conference in Dublin, an event which was hosted by the Irish Academy of Medical Sciences (IAMS) which is an association of leading researchers in medical sciences in Ireland.

The mission of the IAMS is to promote excellence in basic and clinical biomedical research, to facilitate cross-disciplinary research initiatives, and to drive an integrated knowledge economy, ultimately to the overall benefit of Irish society. The conference heard from a number of leading international experts including Prof. Dermot Kelleher, Dean of Medicine at Imperial College London. A patient perspective on the importance of research was provided by two speakers; Eibhlin Mulroe CEO of IPPOSI and Orla Keane of the Alpha One Foundation.

Dr. Tomás Carroll and Orla Keane, Alpha One Foundation

The power of a patient voice at a scientific or medical conference cannot be overestimated and attendees were spell-bound by Orla's honest and heartfelt story about living with Alpha-1. We are always grateful to our patients who have the courage to talk about their condition. A full conference report can be found here.

 

What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test. 
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha One Foundation provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. For more details ring 01-8093871 or email alpha1@rcsi.ie.