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Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304
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National Centre of Expertise for Alpha-1
In May 2016 the HSE designated the Alpha-1 Clinical Unit at Beaumont Hospital (along with Alpha-1 Foundation Ireland) as the National Centre of Expertise for Alpha-1.
Alpha-1 Foundation Ireland is based in the RCSI Education & Research Centre at Beaumont Hospital in Dublin. Foundation staff of 3 includes a CEO, a dedicated senior scientist and a specialist Alpha-1 nurse. These positions are supported in part by funding from the Department of Health and Children and the Health Service Executive (HSE). Alpha-1 Foundation Ireland hosts an information centre for members of the public and healthcare professionals and enquiries can be made by phone or email. The foundation also hosts an annual conference for patients and their families, usually held in October (see 2018 conference report here).
The National Alpha-1 Clinic is based at Beaumont Hospital. Here, the rapid access specialist Alpha-1 clinic is available for newly-diagnosed Alphas where they are seen by a multidisciplinary team including doctors, nurses, respiratory scientists, and physiotherapists. Professor Gerry McElvaney is the clinical lead at the Alpha-1 clinic and is a consultant respiratory physician with over 30 years experience of Alpha-1.
Figure 1. Alpha-1 Foundation Ireland Activities
Info Centre
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie