Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304
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2021 © Copyright Alpha-1 Foundation Ireland. All rights reserved.
Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304
Site Developed & Maintained by Ecom-Ireland
2021 © Copyright Alpha-1 Foundation Ireland. All rights reserved.
International Clinical Trials Day – Open Day
The 20th of May each year is celebrated as International Clinical Trials Day and to mark this a public open day is being held at the Clinical Research Facility (CRF) in St. James’s Hospital in Dublin. The aim of this open day is to inform patients, research participants, support groups and the general public about what happens in clinical research and the importance of this research.
A series of lectures will take place in the morning (from 10am to 12pm) and in the afternoon (from 1pm to 3pm) there will be an ‘open house’ in the Clinical Research Facility. A timetable for the day is outlined below.
Morning Session, 10 am – 12 noon: Durkan Theatre, Trinity Centre for Health Sciences, St James’ Hospital
Afternoon Session, 1 pm – 3 pm: Clinical Reseach Facility
If you have taken part in clinical reseach in the past, are considering doing so or indeed are just curious as to what it entails this day would certainly be worth attending. If you would like to attend or have any questions contact BURDZANA@tcd.ie or Anna at 01-4103900. Alternatively contact us at alpha1@rcsi.ie.
There was an excellent article in the Irish Times Health Supplement on Tuesday May 19th about the importance of clinical trials in developing new medicines, how trials work, and what is involved for patients. The article can be read here.
Info Centre
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie