Pharmaceutical Company Deadline Looms for 21 Alpha-1 Patients On Life-Changing Respreeza Therapy. With just 30 days to go, the clock is ticking towards a May 31 deadline when pharmaceutical company, CSL Behring, has
Alpha-1 patients receiving the life-changing therapy Respreeza protested outside the offices of the Health Service Executive (HSE) at the end of February to demand that the HSE and Minister commit to long-term funding
We were deeply saddened to hear of the passing of John Walsh, co-founder and CEO of the US Alpha-1 Foundation on Tuesday, March 7th. John was an inspirational leader for the Alpha-1 community
The 6th Alpha-1 Global Patient Congress is taking place from April 6th to 8th in Lisbon, Portugal. This biennial conference is an opportunity for the Alpha-1 community around the world to meet, learn,
As a six month old infant, Catriona Garry developed full-blown liver cirrhosis caused by Alpha-1. Three years later, in 1999, she received a life-saving liver transplant. In 2008, she also received a kidney
The Alpha One Foundation is calling on the Minister for Health to intervene following a decision by the National Centre for Pharmacoeconomics (NCPE) not to approve funding of the life-changing therapy Respreeza. Respreeza
The Alpha One Foundation Christmas Cards are for sale again this year at the same great value at €5 for a pack of ten. The cards include our contact details as well as information
We are delighted to showcase our new educational film on Alpha-1 which was officially launched at the Annual Alpha-1 Conference on October 7th. Funded by an educational grant from the Health Research Board
The Annual Alpha-1 Patient Conference took place again this year in the Marino Institute of Education in Drumcondra in Dublin last Friday October 7th. Over 90 Alphas and family members attended what was
We are delighted to announce the Annual Alpha-1 Conference will take place on Friday 7th October 2016 beginning at 9.30am in Marino Institute of Education, Griffith Avenue, Dublin 9. (more…)
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