Researchers from the Alpha One Foundation, the Royal College of Surgeons in Ireland and Harvard University have made a major breakthrough in identifying people who have an increased risk of developing COPD (chronic
Alpha-1 patient Josephine McGuirk and Professor Gerry McElvaney were guests on national station TV3's morning show Ireland:AM on February 3rd, 2011. This was an excellent discussion about Alpha-1 and the importance of participating
A recent survey has revealed that one in every two people nationwide has experienced lung disease, either personally or through a member of their family. Yet only 18% have had their lungs tested
The new Alpha-1 Global website was launched last month. The site provides a platform for Alpha-1 patients to communicate and to collaborate; to provide a central network for exchange of news, information and
The annual Alpha-1 conference will take place this year on Friday, October 24th in the Marino Institute of Education in Dublin. We are delighted to confirm that Mr. John Walsh, CEO of the US
A dramatic decline in smoking rates has coincided with the introduction of plain-packaging laws in Australia. The daily smoking rate decreased from 15.1 per cent to 12.8 per cent between 2010 and 2013,
An exciting new project has been launched by IPPOSI and UCD in an attempt to solve some of the everyday problems that people with medical conditions encounter. (more…)
The National Rare Disease Plan 2014 - 2018, published this month, outlines proposals for a new clinical care programme specifically for the treatment of rare diseases, which affect an estimated 6 to 8
European Respiratory Society (ERS) Vice President Professor Jorgen Vestbo together with leading experts examine the current and future burden of chronic obstructive pulmonary disease (COPD) in this excellent video. (more…)
An Easy Guide to Rare Diseases has been produced to increase awareness about the challenges of living with a rare disease and to highlight the priorities that need to be included in the
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