June 3, 2015 Comments Off

A recent meeting in Dublin in November 2014 highlighted the area of public and patient involvement in research (known as PPI).  PPI describes a variety of ways that researchers can engage with people

May 28, 2015 Comments Off

There are just four days to go until the VHI Women's Mini Marathon which takes place next bank holiday Monday, June 1st at 2pm. As ever we encourage ladies to take part to

May 28, 2015 Comments Off

Simon Hamilton, NI Health Minister recently launched a new report which examined progress made in reducing exposure to second-hand smoke in Northern Ireland incorporating a 5 year review of smoke-free legislation. (more…)

May 8, 2015 Comments Off

The American Thoracic Society (ATS) 2015 International Conference will take place May 15-20 in Denver Colorado. The ATS is a leading medical association dedicated to advancing lung, critical care and sleep medicine. (more…)

April 30, 2015 Comments Off

Over 200 people from 26 countries attended the 5th  Alpha-1 Global Patient Congress in Barga, Italy earlier this month. Speakers included renowned Alpha-1 scientists, clinicians, industry partners, patients, caregivers and families. (more…)

April 17, 2015 Comments Off

The 20th of May each year is celebrated as International Clinical Trials Day and to mark this a public open day is being held at the Clinical Research Facility (CRF) in St. James’s

April 9, 2015 Comments Off

Alpha-1 Global is hosting the 2015 Alpha-1 Global patient Congress this weekend; 9-11 April in Barga, Italy. Alpha-1 patients from around the world as well as Alpha-1 community leaders, organisations and healthcare professionals will

April 2, 2015 Comments Off

The HSE has stated Ireland’s first National Rare Disease Office is expected to open officially in the second quarter of 2015. The establishment of a National Rare Disease Office (NRDO) was one of

March 27, 2015 Comments Off

Having been diagnosed with Alpha-1 Antitrypsin Deficiency at just six months old,  Colm Costello from Ballinamore, Co.Leitrim was one of the youngest patients to undergo a liver transplant operation in Ireland in May

March 27, 2015 Comments Off

The VHI Women's Mini Marathon is taking place on Monday June 1st in Dublin and as ever we welcome ladies to take part to raise funds and awareness for the Alpha One Foundation!