The 4th International Alpha-1 Patient Congress and International Research Conference on Alpha-1 Antitrypsin Deficiency took place in Barcelona in April this year.We were privileged to be asked to attend as country delegate and
The 4th International Alpha-1 Patient Congress and International Research Conference on Alpha-1 Antitrypsin Deficiency took place in Barcelona in April this year.We were privileged to be asked to attend as country delegate and
National Alpha-1 Targeted Detection Programme Alpha-1 Foundation Ireland is dedicated to increasing diagnosis, raising awareness and improving the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1). Alpha-1 is a common inherited condition but is massively
There are 2 tests required to correctly diagnose alpha-1 antitrypsin deficiency. The first test is called an alpha-1 antitrypsin (AAT) level, the second more informative test is called an AAT phenotype. An AAT
The national alpha-1 antitrypsin deficiency (Alpha-1) registry of Ireland was established in 2005 to collect information on Alpha-1 individuals throughout the island of Ireland. The registry is a confidential database that records medical
Researchers from the Alpha One Foundation, the Royal College of Surgeons in Ireland and Harvard University have made a major breakthrough in identifying people who have an increased risk of developing COPD (chronic
An article published in The Journal of the American Medical Association earlier this year documents the 'war against tobacco' which has been ongoing for the past 50 years in the US and indeed
A new European project called EUPATI is trying to collect the real life experiences of patients who have participated in medicines development and clinical trials. People with Alpha-1 who have participated in clinical
The Alpha One Foundation has won a prestigious award for the National Alpha-1 Antitrypsin Deficiency Targeted Detection Programme at the Irish Healthcare Centre Awards held at the Royal Marine Hotel in Dún Laoghaire on
The popular online newspaper TheJournal.ie published an excellent article on Alpha-1 last Sunday evening (January 19th). To date the article has attracted over 28,000 views. As well as excellent interviews with Professor McElvaney
The HSE's QUIT campaign launched a new TV advert at the beginning of the new year, featuring an emotive message from Gerry Collins from Greystones in Co. Wicklow, who has terminal lung cancer