July 7, 2014 Comments Off

European Respiratory Society (ERS) Vice President Professor Jorgen Vestbo together with leading experts examine the current and future burden of chronic obstructive pulmonary disease (COPD) in this excellent video. (more…)

June 27, 2014 Comments Off

For more information on fundraising and how to become involved in the patient support group you can contact us on 01-8093871 or email alpha1@rcsi.ie.  If you decide to organise an event in your

June 27, 2014 Comments Off

The National Alpha-1 Clinic is based at the National Centre of Expertise for AATD at Beaumont Hospital in Dublin. Here, a rapid access specialist Alpha-1 clinic is available for newly-diagnosed Alphas.  The clinic

June 27, 2014 Comments Off

 In May 2016 the HSE designated the Alpha-1 Clinical Unit at Beaumont Hospital (along with Alpha-1 Foundation Ireland) as the National Centre of Expertise for Alpha-1.Alpha-1 Foundation Ireland is based in the RCSI

June 27, 2014 Comments Off

If you would like to refer a patient to the National Alpha-1 Clinic, simply write a referral letter with as much information as possible, and address it to Professor Gerry McElvaney, Consultant Respiratory

June 26, 2014 Comments Off

All 2014 2013 2012 Archive COFFEE MORNING MAYNOOTH JUNE 2014 IRISH HEALTHCARE AWARDS MARCH 2014 ZUMBATHON NOVEMBER 2013 ANNUAL ALPHA-1 CONFERENCE OCTOBER 2013 COPD SUPPORT IRELAND OCTOBER 2013Alpha One Foundation Welcomes the Launch

June 25, 2014 Comments Off

Alpha-1 Antitrypsin Deficiency - Healthcare Provider's GuideAlpha-1 Antitrypsin Deficiency - Healthcare Provider's Guide 

June 25, 2014 Comments Off

National Alpha-1 Registry The National Alpha-1 Registry began in 2004. It is a confidential database that records medical information from Alpha-1 individuals. The registry is a vital tool for monitoring disease progression and

June 25, 2014 Comments Off

International Collaborative Study To Establish The 1st International (WHO) Standard For Alpha-1-Antitrypsin Irish scientists based at Beaumont Hospital have been involved in a multicentre study to determine the first ever international standard for

June 25, 2014 Comments Off

A Simple Guide to Clinical Trials The Medical Research Charities Group (MRCG) is an umbrella group of medical research and patient support charities, many of which are involved in with rare diseases. In