Over 200 people from 26 countries attended the 5th Alpha-1 Global Patient Congress in Barga, Italy earlier this month. Speakers included renowned Alpha-1 scientists, clinicians, industry partners, patients, caregivers and families. (more…)
The 20th of May each year is celebrated as International Clinical Trials Day and to mark this a public open day is being held at the Clinical Research Facility (CRF) in St. James’s
Alpha-1 Global is hosting the 2015 Alpha-1 Global patient Congress this weekend; 9-11 April in Barga, Italy. Alpha-1 patients from around the world as well as Alpha-1 community leaders, organisations and healthcare professionals will
The HSE has stated Ireland’s first National Rare Disease Office is expected to open officially in the second quarter of 2015. The establishment of a National Rare Disease Office (NRDO) was one of
Having been diagnosed with Alpha-1 Antitrypsin Deficiency at just six months old, Colm Costello from Ballinamore, Co.Leitrim was one of the youngest patients to undergo a liver transplant operation in Ireland in May
The VHI Women's Mini Marathon is taking place on Monday June 1st in Dublin and as ever we welcome ladies to take part to raise funds and awareness for the Alpha One Foundation!
EUPATI is a new European Union training programme designed to help patients become directly involved in the research and development of new medicines. Five Irish patients joined the course in October 2014. The second
On March 29, 2004 the Republic of Ireland became the first country in the world to implement a national workplace smoking ban. This legislation was comprehensive, banning smoking in workplaces including restaurants, bars
New research suggests e-cigarettes generate toxic chemicals similar to those found in tobacco and may harm the lungs and immune system. In this new study, mice exposed to e-cigarette fumes suffered mild damage
Tests Required There are 2 tests required to diagnose alpha-1 antitrypsin deficiency. The first test is an alpha-1 antitrypsin (AAT) level, the second more informative test is an AAT phenotype. An AAT phenotype
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