The Annual Alpha-1 Patient Conference will take place this year on Friday the 30th of October in the Marino Institute of Education in North Dublin. Speakers and a full agenda are yet to
A Donegal family are launching a book of poetry in memory of their brother who had Alpha-1. The book of poems written by their brother is called “Window to my World” and the
COPD Support Ireland is a charity set up in 2013 to support all those living with a lung condition called chronic obstructive pulmonary disease (COPD). COPD is a term used to include chronic
Findings from CSL Behring's RAPID study have demonstrated the effectiveness of augmentation therapy in slowing emphysema due to Alpha-1. (more…)
As a follow on from the 2014 study 'Web Information for Families of Children with Rare Diseases' The Saoirse Foundation is pleased to announce an addition to the proposed website of parents of
The new National Rare Disease Office was officially opened by Minister for Health Leo Varadkar, T.D. in the Mater Hospital in Dublin yesterday, June 4th. (more…)
A recent meeting in Dublin in November 2014 highlighted the area of public and patient involvement in research (known as PPI). PPI describes a variety of ways that researchers can engage with people
There are just four days to go until the VHI Women's Mini Marathon which takes place next bank holiday Monday, June 1st at 2pm. As ever we encourage ladies to take part to
Simon Hamilton, NI Health Minister recently launched a new report which examined progress made in reducing exposure to second-hand smoke in Northern Ireland incorporating a 5 year review of smoke-free legislation. (more…)
The American Thoracic Society (ATS) 2015 International Conference will take place May 15-20 in Denver Colorado. The ATS is a leading medical association dedicated to advancing lung, critical care and sleep medicine. (more…)
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