June 27, 2014 Comments Off

If you would like to refer a patient to the National Alpha-1 Clinic, simply write a referral letter with as much information as possible, and address it to Professor Gerry McElvaney, Consultant Respiratory

June 26, 2014 Comments Off

All 2014 2013 2012 Archive COFFEE MORNING MAYNOOTH JUNE 2014 IRISH HEALTHCARE AWARDS MARCH 2014 ZUMBATHON NOVEMBER 2013 ANNUAL ALPHA-1 CONFERENCE OCTOBER 2013 COPD SUPPORT IRELAND OCTOBER 2013Alpha One Foundation Welcomes the Launch

June 25, 2014 Comments Off

Alpha-1 Antitrypsin Deficiency - Healthcare Provider's GuideAlpha-1 Antitrypsin Deficiency - Healthcare Provider's Guide 

June 25, 2014 Comments Off

National Alpha-1 Registry The National Alpha-1 Registry began in 2004. It is a confidential database that records medical information from Alpha-1 individuals. The registry is a vital tool for monitoring disease progression and

June 25, 2014 Comments Off

International Collaborative Study To Establish The 1st International (WHO) Standard For Alpha-1-Antitrypsin Irish scientists based at Beaumont Hospital have been involved in a multicentre study to determine the first ever international standard for

June 25, 2014 Comments Off

A Simple Guide to Clinical Trials The Medical Research Charities Group (MRCG) is an umbrella group of medical research and patient support charities, many of which are involved in with rare diseases. In

June 25, 2014 Comments Off

Researchers from the Alpha One Foundation, the Royal College of Surgeons in Ireland and Harvard University have made a major breakthrough in identifying people who have an increased risk of developing COPD (chronic

June 25, 2014 Comments Off

The Irish Times, the Irish Examiner, the RTE website, the Evening Herald and several other newspapers have this week (January 13th) reported a new discovery by scientists based at the Royal College of

June 25, 2014 Comments Off

Irish scientists based at Beaumont Hospital have been involved in a multicentre study to determine the first ever international standard for alpha-1 antitrypsin. This study will make it easier for research groups and

June 25, 2014 Comments Off

A new study which was presented at the Irish Thoracic Society annual scientific meeting for 2008 held in Belfast in November highlighted the high prevalence of Alpha-1 in Ireland. (more…)