Alpha1 Admin – Alpha1

‘The majority of people carrying this gene have no idea’

April 3, 2021 Comments Off

Around 250,000 of Irish people are carriers of the gene causing Alpha-1 antitrypsin deficiency, a genetic disorder that can affect the lungs, liver and skin and can be deadly if undiagnosed. Kevin Colfer

February Marathon Challenge in aid of Alpha-1

March 10, 2021 Comments Off

Family and friends of one of the original Alpha-1 warriors Josephine McGuirk completed a unique marathon challenge for the month of February. This goal was to raise awareness of Alpha-1 and to fundraise for

Irish Alpha-1 Pioneer Wins Prestigious National Award

February 18, 2021 Comments Off

The Health Research Board (HRB) of Ireland has announced Gerry McElvaney, Consultant Respiratory Physician at Beaumont Hospital and Professor of Medicine at RCSI University of Medicine and Health Sciences, as the winner of

Orla’s Story

November 18, 2020 Comments Off

Spring cleaning may not be good for your health. This was the experience of one Maynooth resident following her enthusiastic assault on a long-neglected oven. The cleaning agent used by Orla Keane, 56,

New Irish Alpha-1 Research in 2020

October 5, 2020 Comments Off

Irish Alpha-1 research published last month in “Thorax”, one of the world's leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions. (more…)

I Will Tell You The Truth About Nonprofit In The Next 60 Seconds.

September 28, 2020 Comments Off

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