Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304
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2021 © Copyright Alpha-1 Foundation Ireland. All rights reserved.
Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304
Site Developed & Maintained by Ecom-Ireland
2021 © Copyright Alpha-1 Foundation Ireland. All rights reserved.
Annual Alpha-1 Patient Meeting 2014
The Alpha One Foundation is delighted to announce the Annual Alpha-1 Conference will take place on:
Friday 24th October 2014,
commencing at 9.30 am
in Marino Institute of Education,
Griffith Avenue, Dublin 9.
We would like to invite all Alpha-1 patients and their families to attend. We would especially like to welcome newly diagnosed Alpha-1 individuals and their families. This year we are delighted to have a representative from the US Embassy opening our conference. Our special guest speaker is Mr. John Walsh, CEO of the US Alpha-1 Foundation and Alpha-1 patient. John is an inspiration to the Alpha-1 community around the world and has done incredible work to raise awareness and fund research into Alpha-1.
The exciting line-up of speakers includes Professor Gerry McElvaney, Alpha-1 specialist at Beaumont Hospital, Dr. Kevin Molloy, Alpha-1 researcher, and Mr. Damien Peelo from COPD Support Ireland. Marino Institute is easily accessed from the M50 and is situated on Griffith Avenue on the north side of the city .
Attendance is free of charge with a complimentary lunch provided. Christmas cards will be on sale on the day, €5 for a pack of 10. To reserve your place at this year’s conference phone 01-8093876 or email alpha1@rcsi.ie.
Michelle O’Brien, Physiotherapist speaking at last years conference
Agenda
09.30 Registration, Tea and Coffee
10.00 Conference Opening by Representative from the US Embassy
10.10 Clinical Trials and New Developments for Alpha-1
Professor Gerry McElvaney, Respiratory Consultant, Beaumont Hospital
10.30 The US Alpha-1 Foundation – An Amazing Success Story
John Walsh, President & CEO, Alpha-1 Foundation USA
11.10 Genetics in Ireland & Alpha-1
Dr. Gianpiero Cavalleri, Senior Lecturer in Human Genetics, RCSI
11.35 The MZ Question – An Irish Family Study
Dr. Kevin Molloy, Department of Medicine, RCSI
12.00 National Screening Programme & Current Research in Alpha-1
Laura Fee, Alpha One Foundation & Dr. Emer Reeves, RCSI
12.20 Question and Answers
12.30 Light Lunch Provided in College Cafeteria
13.30 COPD Support Ireland
Damien Peelo, CEO, COPD Support Ireland
14.00 Pulmonary Rehabilitation and Alpha-1
Michelle O’Brien, Physiotherapist, Respiratory Unit, St Michael’s Hospital, Dún Laoghaire
15.00 Close
Info Centre
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie