The Annual Alpha-1 Patient Conference will take place this year on Friday the 30th of October in the Marino Institute of Education in North Dublin. All Alpha-1 patients and their families are invited to attend, with a special welcome for newly diagnosed Alpha-1 individuals and their families.
Professor McElvaney speaking at the 2014 Alpha-1 Patient Conference
Attendance is free of charge with a complimentary lunch provided. To reserve your place at this year’s conference phone 01-8093876 or email alpha1@rcsi.ie. We look forward to meeting you on the day!
Agenda
09.30 Registration, Tea and Coffee
10.00 Conference Opening by Mr. Tommie Gorman, RTÉ Northern Editor and patient advocate
10.10 Replacement Therapy and New Developments in Alpha-1
Professor Gerry McElvaney, Respiratory Consultant Beaumont Hospital
10.40 Genetics in Ireland & Alpha-1
Dr. Gianpiero Cavalleri, Senior Lecturer in Human Genetics, RCSI
11.00 Lung Transplant in Ireland
Dr. Karen Redmond, Cardiothoracic Surgeon, Transplant Unit, Mater University Hospital
11.30 National Screening Programme & Current Research in Alpha-1
Dr. Tomás Carroll, Laura Fee, Alpha One Foundation & Dr. Emer Reeves, RCSI
12.00 Pulmonary Rehabilitation in Alpha-1
Eoin Durkan, PhD Researcher, School of Health and Human Performance, Dublin City University
12.20 Question and Answers
12.30 Light Lunch Provided in College Cafeteria
13.45 ‘Window To My World’
Poem by John O’Donnell (RIP), recited by member of the O’Donnell family
14.00 Liver disease in children and adults in Alpha-1
Dr. Annemarie Broderick, Consultant Paediatric Gastroenterologist, Our Lady’s Children Hospital, Crumlin
14.30 Pulmonary Rehabilitation and Exercise Demonstration
Eóin Durkan, PhD Student, School of Health and Human Performance, Dublin City University
15.00 Close
Our report on the 2014 Alpha-1 Patient Conference https://www.alpha1.ie/annual-alpha-1-patient-conference-friday-october-30th/
Directions to the Marino Institute of Education
Location
Directions from the City Centre
From the top of O’Connell Street, drive past Parnell Square to the Drumcondra Road.
Follow the signs to the airport.
After the Skylon Hotel in Drumcondra, take a right at the next large crossroads; this brings you down tree-lined Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education on the right.
Directions from the M50
After the West link toll Booth on the M50 drive towards the Airport.
Take a right exit towards the city centre from Junction 3 at the M50.
Drive the M1 to the N1 towards the City Centre.
After the Regency Hotel take a left onto tree-lined Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino Institute of Education on the right.
Directions from the Airport
Exit the Airport and drive on the M1 to the N1 towards the city centre.
After the Regency Hotel take a left onto Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.
Car Parking
Complimentary car parking is available for up to 150 cars.
Info Centre
WhatisAlpha-1Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
WhatisAlpha-1AntitrypsinDeficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
HowDoIGetTested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie
Alpha-1 Patient Conference: Agenda
The Annual Alpha-1 Patient Conference will take place this year on Friday the 30th of October in the Marino Institute of Education in North Dublin. All Alpha-1 patients and their families are invited to attend, with a special welcome for newly diagnosed Alpha-1 individuals and their families.
Professor McElvaney speaking at the 2014 Alpha-1 Patient Conference
Attendance is free of charge with a complimentary lunch provided. To reserve your place at this year’s conference phone 01-8093876 or email alpha1@rcsi.ie. We look forward to meeting you on the day!
Agenda
09.30 Registration, Tea and Coffee
10.00 Conference Opening by Mr. Tommie Gorman, RTÉ Northern Editor and patient advocate
10.10 Replacement Therapy and New Developments in Alpha-1
Professor Gerry McElvaney, Respiratory Consultant Beaumont Hospital
10.40 Genetics in Ireland & Alpha-1
Dr. Gianpiero Cavalleri, Senior Lecturer in Human Genetics, RCSI
11.00 Lung Transplant in Ireland
Dr. Karen Redmond, Cardiothoracic Surgeon, Transplant Unit, Mater University Hospital
11.30 National Screening Programme & Current Research in Alpha-1
Dr. Tomás Carroll, Laura Fee, Alpha One Foundation & Dr. Emer Reeves, RCSI
12.00 Pulmonary Rehabilitation in Alpha-1
Eoin Durkan, PhD Researcher, School of Health and Human Performance, Dublin City University
12.20 Question and Answers
12.30 Light Lunch Provided in College Cafeteria
13.45 ‘Window To My World’
Poem by John O’Donnell (RIP), recited by member of the O’Donnell family
14.00 Liver disease in children and adults in Alpha-1
Dr. Annemarie Broderick, Consultant Paediatric Gastroenterologist, Our Lady’s Children Hospital, Crumlin
14.30 Pulmonary Rehabilitation and Exercise Demonstration
Eóin Durkan, PhD Student, School of Health and Human Performance, Dublin City University
15.00 Close
Our report on the 2014 Alpha-1 Patient Conference
https://www.alpha1.ie/annual-alpha-1-patient-conference-friday-october-30th/
Directions to the Marino Institute of Education
Location
Directions from the City Centre
From the top of O’Connell Street, drive past Parnell Square to the Drumcondra Road.
Follow the signs to the airport.
After the Skylon Hotel in Drumcondra, take a right at the next large crossroads; this brings you down tree-lined Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education on the right.
Directions from the M50
After the West link toll Booth on the M50 drive towards the Airport.
Take a right exit towards the city centre from Junction 3 at the M50.
Drive the M1 to the N1 towards the City Centre.
After the Regency Hotel take a left onto tree-lined Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino Institute of Education on the right.
Directions from the Airport
Exit the Airport and drive on the M1 to the N1 towards the city centre.
After the Regency Hotel take a left onto Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino institute of Education.
Car Parking
Complimentary car parking is available for up to 150 cars.
Info Centre
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie