The Annual Alpha-1 Patient Conference 2012 will take place at 10am on Friday 19th October in the Marino Institute of Education on Griffith Avenue, Dublin 9. All Alpha-1 patients and their family members are welcome to the event.
Annual Alpha-1 Patient Conference Marino Institute of Education Friday October 19th 2012 Agenda
09.30 Registration, Tea and Coffee
10.00 Conference Opening by Dr Ronnie Delany
10.10 Developments in the Treatment and Diagnosis of Alpha-1 Prof N.G. McElvaney, Respiratory Consultant, Beaumont Hospital
10.30 Practical Tips for Healthy Living Dr Frank Doyle, Lecturer in Psychology, RCSI
11.00 National Screening Programme & Current Research Developments in Alpha-1 Dr Tomás Carroll, Alpha One Foundation & Dr David Bergin, RCSI
11.30 Research in Rare Diseases in Ireland Eibhlin Mulroe, CEO, Irish Platform for Patients’ Organisations, Science and Industry
12.00 Smoking Cessation in the Community Setting Miriam Gunning, Senior Health Promotion Officer for Tobacco, HSE
12.30 Light Lunch Provided in College Cafeteria Representatives from the following groups will be present during this interval Health Promotion Unit Beaumont Hospital, Children’s Liver Disease Ireland Asthma Society of Ireland Citizen Information Services
13.30 Pulmonary Rehabilitation Michelle O’Brien, Physiotherapist, Pulmonary Rehabilitation, St Michael’s Hospital in Dun Laoghaire
14.40 Alpha-1 Support Group Meeting
16.00 Close
How to find us at the Marino Institute of Education
Location
Directions from the City Centre From the top of O’Connell Street, drive past Parnell Square to the Drumcondra Road. Follow the signs to the airport. After the Skylon Hotel, take a right at the next large crossroads; this brings you down Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino Institute of Education.
Directions from the M50 After the West-link toll booth on the M50 drive towards the Airport. Take a right exit towards the City centre from Junction 3 at the M50. Drive the M1 to the N1 towards the City Centre. After the Regency Hotel take a left onto Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino Institute of Education.
Directions from the Airport Exit the Airport and drive on the M1 to the N1 towards the City Centre. After the Regency Hotel take a left onto Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino Institute of Education.
Car Parking Complimentary Car Parking Facilities are available in the grounds for up to 150 cars.
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
WhatisAlpha-1AntitrypsinDeficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
HowDoIGetTested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie
Annual Alpha-1 Conference 2012
The Annual Alpha-1 Patient Conference 2012 will take place at 10am on Friday 19th October in the Marino Institute of Education on Griffith Avenue, Dublin 9. All Alpha-1 patients and their family members are welcome to the event.
Annual Alpha-1 Patient Conference
Marino Institute of Education
Friday October 19th 2012
Agenda
09.30 Registration, Tea and Coffee
10.00 Conference Opening by Dr Ronnie Delany
10.10 Developments in the Treatment and Diagnosis of Alpha-1
Prof N.G. McElvaney, Respiratory Consultant, Beaumont Hospital
10.30 Practical Tips for Healthy Living
Dr Frank Doyle, Lecturer in Psychology, RCSI
11.00 National Screening Programme & Current Research Developments in Alpha-1
Dr Tomás Carroll, Alpha One Foundation & Dr David Bergin, RCSI
11.30 Research in Rare Diseases in Ireland
Eibhlin Mulroe, CEO, Irish Platform for Patients’ Organisations, Science and Industry
12.00 Smoking Cessation in the Community Setting
Miriam Gunning, Senior Health Promotion Officer for Tobacco, HSE
12.30 Light Lunch Provided in College Cafeteria
Representatives from the following groups will be present during this interval
Health Promotion Unit Beaumont Hospital,
Children’s Liver Disease Ireland
Asthma Society of Ireland
Citizen Information Services
13.30 Pulmonary Rehabilitation
Michelle O’Brien, Physiotherapist, Pulmonary Rehabilitation, St Michael’s Hospital in Dun Laoghaire
14.40 Alpha-1 Support Group Meeting
16.00 Close
How to find us at the Marino Institute of Education
Location
Directions from the City Centre
From the top of O’Connell Street, drive past Parnell Square to the Drumcondra Road.
Follow the signs to the airport.
After the Skylon Hotel, take a right at the next large crossroads; this brings you down Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino Institute of Education.
Directions from the M50
After the West-link toll booth on the M50 drive towards the Airport.
Take a right exit towards the City centre from Junction 3 at the M50.
Drive the M1 to the N1 towards the City Centre.
After the Regency Hotel take a left onto Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino Institute of Education.
Directions from the Airport
Exit the Airport and drive on the M1 to the N1 towards the City Centre.
After the Regency Hotel take a left onto Griffith Avenue.
At the fourth set of traffic lights on Griffith Avenue, take a left into Charlemont Estate, leading to the entrance for Marino Institute of Education.
Car Parking
Complimentary Car Parking Facilities are available in the grounds for up to 150 cars.
Marino Institute of Education
Griffith Avenue, Dublin 9 Ireland
t: +353 1 805 7700
f: +353 1 833 5290
e: info@mie.ie
Info Centre
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie