Would you like to help build a better Health Service?

September 18, 2017 Alpha1 Admin Comments Off

A new project called “Your Voice Matters; stories to build a better health service” has been launched by the HSE in conjunction with IPPOSI. To improve the health service, the HSE wants to find out what patients and service users expect from it and to find out what matters most to people in Ireland.

Your Voice Matters

In Your Voice Matters – a short survey – the public is asked to tell their story (experience) about using health services. According to the HSE project team, they will use the information from “Your Voice Matters” to:

make our services better,
influence how we make decisions, and
improve services over time.

You can start the survey right now by clicking here.

More details on the survey and the larger project can be found on the HSE website here.

Info Centre

What is Alpha-1 Antitrypsin?

Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.

What is Alpha-1 Antitrypsin Deficiency?

Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).

How Do I Get Tested?

The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie

Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304

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