My name is Gerry Finnerty and I am an Alpha-1 patient. I have the ZZ form of the condition which is the most severe to be diagnosed with. This means both copies of
Alpha-1 Family & Patient ConferenceThe Alpha-1 Patient & Family Conference took place on Saturday 5th October 2024 in the Marino Institute of Education after a break of five years because of the Covid-19
Two of the most important projects in Alpha-1 carried out in the last 20 years were two Irish family studies. Similar in design, both studies saw researchers from RCSI in Dublin visit people
A new article on MZ type Alpha-1 was published in the prestigious American Journal of Respiratory and Critical Care Medicine in April 2022. This is one of the top journals in the field
Around 250,000 of Irish people are carriers of the gene causing Alpha-1 antitrypsin deficiency, a genetic disorder that can affect the lungs, liver and skin and can be deadly if undiagnosed. Kevin Colfer
Family and friends of one of the original Alpha-1 warriors Josephine McGuirk completed a unique marathon challenge for the month of February. This goal was to raise awareness of Alpha-1 and to fundraise for
The Health Research Board (HRB) of Ireland has announced Gerry McElvaney, Consultant Respiratory Physician at Beaumont Hospital and Professor of Medicine at RCSI University of Medicine and Health Sciences, as the winner of
Spring cleaning may not be good for your health. This was the experience of one Maynooth resident following her enthusiastic assault on a long-neglected oven. The cleaning agent used by Orla Keane, 56,
Irish Alpha-1 research published last month in “Thorax”, one of the world's leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions. (more…)
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