Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304
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2021 © Copyright Alpha-1 Foundation Ireland. All rights reserved.
Alpha-1 Suite, RCSI Building, Beaumont Hospital, Dublin 9, Ireland
Charity Number CHY22304
Site Developed & Maintained by Ecom-Ireland
2021 © Copyright Alpha-1 Foundation Ireland. All rights reserved.
Fourth International Alpha-1 Patient Congress
The 4th International Patient Congress on Alpha-1 Antitrypsin Deficiency is being held in Barcelona on the weekend of April 12th – 13th, 2013.
We are delighted to have a delegation of Irish Alphas and their families attending the conference and proceedings can be watched live here.
The objectives of the International Patient Congress and International Research Conference are to:
– Create global awareness of Alpha-1 Antitrypsin Deficiency.
– Bring together representatives of Alpha-1 organizations from around the world to discuss the impact and the status of Alpha-1 in each country and to identify unmet needs.
– Offer Alpha-1 researchers an opportunity to present their latest findings on Alpha-1 liver disease.
– To allow patients and researchers to meet.
– Encourage the creation of an International Working Group to continue joint action moving forward.
Representatives from the entire community – Alpha-1 organizations from many countries, Alphas and their families, healthcare professionals and industry – will meet in a joint session with leading Alpha-1 researchers on Friday afternoon, 12th April.
Info Centre
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie