Alpha-1 Global is hosting the 2015 Alpha-1 Global patient Congress this weekend; 9-11 April in Barga, Italy. Alpha-1 patients from around the world as well as Alpha-1 community leaders, organisations and healthcare professionals will be in attendance.
The aim of this years congress is to 1) build cohesive communication between the various Alpha-1 associations and organisations, 2) supply up-to-date information about research and the latest Alpha-1 developments around the world, 3) provide access to valuable resources and educational materials in a variety of languages, 4) conduct educational Alpha-1 seminars online and 5) encourage active participation in the online discussion platform by contributing knowledge, questions, experiences and ideas. An international research Conference will also take place 9-10 April in which leading researchers in Alpha-1 around the world will speak on topics including basic mechanisms involved in Alpha-1, diagnosis, assessment and treatment. To read more about the 2015 Congress and to take a look at the agenda see here.
Attendees will get the opportunity to hear updates on Alpha-1 events around the world, understand the importance of participating in clinical research, interact with Alpha-1 scientists and hear about the latest research findings, share ideas on how to build and sustain a patient support group and review strategies and tools for advocacy. Three Irish families affected by Alpha-1 are attending the conference this weekend.
The 2013 Congress in Barcelona drew 250 people from 23 countries, read more on the 2013 Congress here.
Info Centre
WhatisAlpha-1Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
WhatisAlpha-1AntitrypsinDeficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
HowDoIGetTested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie
Alpha-1 Global Patient Congress 2015
Alpha-1 Global is hosting the 2015 Alpha-1 Global patient Congress this weekend; 9-11 April in Barga, Italy. Alpha-1 patients from around the world as well as Alpha-1 community leaders, organisations and healthcare professionals will be in attendance.
The aim of this years congress is to 1) build cohesive communication between the various Alpha-1 associations and organisations, 2) supply up-to-date information about research and the latest Alpha-1 developments around the world, 3) provide access to valuable resources and educational materials in a variety of languages, 4) conduct educational Alpha-1 seminars online and 5) encourage active participation in the online discussion platform by contributing knowledge, questions, experiences and ideas. An international research Conference will also take place 9-10 April in which leading researchers in Alpha-1 around the world will speak on topics including basic mechanisms involved in Alpha-1, diagnosis, assessment and treatment. To read more about the 2015 Congress and to take a look at the agenda see here.
Attendees will get the opportunity to hear updates on Alpha-1 events around the world, understand the importance of participating in clinical research, interact with Alpha-1 scientists and hear about the latest research findings, share ideas on how to build and sustain a patient support group and review strategies and tools for advocacy. Three Irish families affected by Alpha-1 are attending the conference this weekend.
The 2013 Congress in Barcelona drew 250 people from 23 countries, read more on the 2013 Congress here.
Info Centre
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie