A recent meeting in Dublin in November 2014 highlighted the area of public and patient involvement in research (known as PPI). PPI describes a variety of ways that researchers can engage with people for whom their research is relevant. It also plays an important role in ensuring that patients are informed about research which is relevant to them.
It’s true goal is to achieve a partnership between the public/patients and researchers ultimately leading to improved research quality, relevance and outcomes. Following the meeting an informative report was produced by the Irish Health Research Forum (IHRF) which describes how the public and the patient can get involved in research and why this approach benefits all of society.
To read a copy of the full PPI report, see here.
Info Centre
WhatisAlpha-1Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
WhatisAlpha-1AntitrypsinDeficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
HowDoIGetTested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie
Public and Patient Involvement (PPI) in Research
A recent meeting in Dublin in November 2014 highlighted the area of public and patient involvement in research (known as PPI). PPI describes a variety of ways that researchers can engage with people for whom their research is relevant. It also plays an important role in ensuring that patients are informed about research which is relevant to them.
It’s true goal is to achieve a partnership between the public/patients and researchers ultimately leading to improved research quality, relevance and outcomes.
Following the meeting an informative report was produced by the Irish Health Research Forum (IHRF) which describes how the public and the patient can get involved in research and why this approach benefits all of society.
To read a copy of the full PPI report, see here.
Info Centre
What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test.
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha-1 Foundation Ireland provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. It is a simple blood test. For more details ring 01-8093871 or email alpha1@rcsi.ie