We are delighted to announce the Annual Alpha-1 Conference will take place on Friday 7th October 2016 beginning at 9.30am in Marino Institute of Education, Griffith Avenue, Dublin 9.

We would like to invite all Alpha-1 patients and their families to attend, with a special welcome for newly diagnosed Alpha-1 individuals and their families.  This year we are delighted to have Professor Robert Sandhaus, Medical Director of the US Alpha-1 Foundation as a guest speaker. We are also delighted to announce David Gillick, Irish international track and field athlete will open the day.

The exciting line-up of speakers includes Professor Gerry McElvaney, Alpha-1 specialist at Beaumont Hospital and Professor Graham Love, CEO of the Health Research Board. We will also be launching our new short film about Alpha-1 which was developed in conjunction with COPD Support Ireland.

Marino Institute is easily accessed from the M50 and is situated on Griffith Avenue on the north side of the city (see directions overleaf). Attendance is free of charge with tea and coffee in the morning and a complimentary lunch provided. Christmas cards will be on sale on the day, €5 for a pack of 10.  To reserve your place at this year’s conference phone 01-8093871/01-8093749 or email This email address is being protected from spambots. You need JavaScript enabled to view it..

We look forward to meeting you all in October!



Annual Alpha-1 Conference

Marino Institute of Education

Friday October 7th 2016


09.30   Registration, Tea and Coffee

10.00   Conference Opening 

10.10   Alpha-1 – The US Experience

             Professor Robert Sandhaus, Medical Director, US Alpha-1 Foundation 

10.40   New Therapies for Alpha-1

             Professor Gerry McElvaney, Respiratory Consultant, Beaumont Hospital

11.10   National Targeted Screening Programme & Registry

             Dr. Tomás Carroll, Laura Fee & Margaret Molloy, Alpha One Foundation

11.30   Coffee Break

11.45   Research Projects in Alpha-1

    Dr. Emer Reeves, Dr. Padraig Hawkins, Dr. Thomas McEnery & Dr. Oliver McElvaney, RCSI

12.15   The SZ Question - An Irish Family Study

             Dr. Alessandro Franciosi, RCSI

12.20   Question and Answers

12.30   Light Lunch Provided in College Cafeteria

13.45   Patient and Public Involvement in Research  

             Dr. Graham Love, CEO, Health Research Board

14.00   Launch of short film ‘Alpha-1’

             Supported by Heath Research Board, COPD Support Ireland & Alpha One Foundation

14.30   Pulmonary Rehabilitation & Exercise Demonstration

             Eóin Durkan, PhD Student, School of Health and Human Performance, Dublin City University

15.00   Close





How to find Marino Institute of Education  

By Car
From M50
After the West Link Toll on the M50 drive towards Dublin Airport. Take the exit towards the city centre at Junction 3 onto the M1 Drive the M1 to the N1 towards the city centre. After the Regency Hotel, turn left onto Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into the Charlemont Estate, leading to the entrance for Marino Institute of Education almost immediately on your right.
From Dublin City Centre
From the top of O'Connell Street, drive past Parnell Square to the Drumcondra Road. Follow signs to the airport. After the Skylon Hotel, take a right at the next large crossroads onto Griffith Avenue. At the fourth set of traffic lights on Griffith Avenue, take a left into the Charlemont Estate, leading to the entrance for Marino Institute of Education almost immediately on your right.

Public Transport – to/from city centre
Bus 123
The 123 stops outside Penney's / Eason's Bookshop at the bottom of O’Connell Street (bridge end). The bus in this direction will say 'Marino' as the destination. It stops outside the gates of Marino Institute of Education. From Heuston Station we would recommend taking the Luas to O'Connell Street and then the 123 bus as detailed above.

Buses 27c, 29a & 42a
These buses run regularly to and from Connolly Station.
These take you up the Malahide Road. It is a short walk from the junction of the Malahide Road and Griffith Avenue down Griffith Avenue to Marino Institute of Education.

For further information or enquiries in relation to accommodation contact:

Marino Conference Centre (at the Marino Institute of Education)
Griffith Avenue, Drumcondra, Dublin 9
Tel: +353 (0)1 805 7700 Email: This email address is being protected from spambots. You need JavaScript enabled to view it.






Hearty congratulations to Stephen Smith who won 3 bronze medals for Team Ireland at the European Transplant Games. Stephen had a successful double lung transplant in the Mater Hospital in 2013 and was a member of a large team of athletes who represented Ireland at the games in Finland in July. Stephen won his first bronze medal in singles table tennis. He followed this up with 2 bronze medals in single and doubles badminton, and also finished 4th in the bowling. Well done Stephen!

singles table tennis

singles badminton 

badminton bronze

The Annual Alpha-1 Patient Conference will take place this year on Friday the 7th of October in the Marino Institute of Education in North Dublin. Speakers and a full agenda will be fully confirmed in the next few weeks however as with previous years the Alpha One Foundation strive to provide an informative and interesting day for those with Alpha-1 as well as family members. Keep an eye on our website and facebook for a full agenda and more details closer to the time.




Alpha-1 Patient Meeting 2015

What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test. 
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha One Foundation provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. For more details ring 01-8093871 or email alpha1@rcsi.ie.