Annual Alpha-1 Patient Conference 2016: Agenda
We are delighted to announce the Annual Alpha-1 Conference will take place on Friday 7th October 2016 beginning at 9.30am in Marino Institute of Education, Griffith Avenue, Dublin 9.
We would like to invite all Alpha-1 patients and their families to attend, with a special welcome for newly diagnosed Alpha-1 individuals and their families. This year we are delighted to have Professor Robert Sandhaus, Medical Director of the US Alpha-1 Foundation as a guest speaker. We are also delighted to announce David Gillick, Irish international track and field athlete will open the day.
The exciting line-up of speakers includes Professor Gerry McElvaney, Alpha-1 specialist at Beaumont Hospital and Professor Graham Love, CEO of the Health Research Board. We will also be launching our new short film about Alpha-1 which was developed in conjunction with COPD Support Ireland.
We look forward to meeting you all in October!
Annual Alpha-1 Conference
Marino Institute of Education
Friday October 7th 2016
09.30 Registration, Tea and Coffee
10.00 Conference Opening
10.10 Alpha-1 – The US Experience
Professor Robert Sandhaus, Medical Director, US Alpha-1 Foundation
10.40 New Therapies for Alpha-1
Professor Gerry McElvaney, Respiratory Consultant, Beaumont Hospital
11.10 National Targeted Screening Programme & Registry
Dr. Tomás Carroll, Laura Fee & Margaret Molloy, Alpha One Foundation
11.30 Coffee Break
11.45 Research Projects in Alpha-1
Dr. Emer Reeves, Dr. Padraig Hawkins, Dr. Thomas McEnery & Dr. Oliver McElvaney, RCSI
12.15 The SZ Question - An Irish Family Study
Dr. Alessandro Franciosi, RCSI
12.20 Question and Answers
12.30 Light Lunch Provided in College Cafeteria
13.45 Patient and Public Involvement in Research
Dr. Graham Love, CEO, Health Research Board
14.00 Launch of short film ‘Alpha-1’
Supported by Heath Research Board, COPD Support Ireland & Alpha One Foundation
14.30 Pulmonary Rehabilitation & Exercise Demonstration
Eóin Durkan, PhD Student, School of Health and Human Performance, Dublin City University
|How to find Marino Institute of Education|
Public Transport – to/from city centre
Buses 27c, 29a & 42a
For further information or enquiries in relation to accommodation contact:
Marino Conference Centre (at the Marino Institute of Education)
Three Bronze Medals for Ireland at European Transplant Games
Hearty congratulations to Stephen Smith who won 3 bronze medals for Team Ireland at the European Transplant Games. Stephen had a successful double lung transplant in the Mater Hospital in 2013 and was a member of a large team of athletes who represented Ireland at the games in Finland in July. Stephen won his first bronze medal in singles table tennis. He followed this up with 2 bronze medals in single and doubles badminton, and also finished 4th in the bowling. Well done Stephen!
Annual Alpha-1 Patient Conference 2016
The Annual Alpha-1 Patient Conference will take place this year on Friday the 7th of October in the Marino Institute of Education in North Dublin. Speakers and a full agenda will be fully confirmed in the next few weeks however as with previous years the Alpha One Foundation strive to provide an informative and interesting day for those with Alpha-1 as well as family members. Keep an eye on our website and facebook for a full agenda and more details closer to the time.
Alpha-1 Patient Meeting 2015