The Run For Alpha-1 2011
A group of Alpha One Foundation supporters will run in the Dublin City Council/BHAA road race on the 9th April 2011.
This race will take place in St. Anne's Park, Raheny with a ladies two mile race begining at 11am and a mens four mile race beginning at 11.30am. The entrance fee is €15 (for non-BHAA members) and all levels as well as supporters are welcome.
Best of luck to all taking part.
Irish Daily Mail interview with Alpha-1 patient
Today's Irish Daily Mail (February 21st 2011) has an article on Alpha-1 Antitrypsin Deficiency (Alpha-1) written by their health editor Petrina Vousden (page 12).
In the article Alpha-1 patient Orla Keane explains how she was first diagnosed and how she is living with the condition. Professor Gerry McElvaney chairman of the Alpha One Foundation also contributed to the article. He explained the importance of testing patients with lung and liver disease for Alpha-1 as "Ninety five per cent of people with Alpha-1 are totally unaware of it". The national targeted detection programme for Alpha-1 Antitrypsin Deficiency is a screening programme funded by the Department of Health, and has tested over 5000 Irish individuals, a quarter of which have some evidence of the condition. The key is early diagnosis of the condition, which can help prevent or postpone the development of lung disease and leads to more effective management.
Media Covers Irish Research into Alpha-1
Researchers from the Royal College of Surgeons in Ireland (RCSI) and Beaumont Hospital have made a breakthrough in understanding the mechanisms behind the most severe form of hereditary emphysema (alpha-1 antitrypsin deficiency, or Alpha-1) and how protein treatments can improve the condition. Please see our news & events section for the full article. You can also view articles on this research in the Irish Times and the Irish Health websites. This research was also described in the Irish Daily Mail and the Irish Daily Star.