The Alpha-1 Action Group are holding a protest at the gates of Dáil Éireann, Kildare Street, Dublin 2 on Wednesday May 31st at 12.30pm.  The protest is to urge the Government to fund the life-changing Respreeza therapy as soon as possible.  Calling on all those affected by Alpha-1, their families, and friends to attend on the day to support the group and this important cause.

The Alpha-1 Action Group are a group of Alpha-1 patients campaigning for Respreeza to be made freely available in Ireland for the treatment of emphysema caused by Alpha-1. If the life-changing Respreeza is funded it could benefit up to 60 patients with Alpha-1, also known as genetic emphysema. 

The Dáil Éireann protest is being organised by the Alpha-1 Action Group & is supported by the Alpha One Foundation. 

For more updates on the Alpha-1 Action Group check https://www.facebook.com/A1PRespreeza/

 

JosephineMcGuirk

 

 

What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test. 
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha One Foundation provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. For more details ring 01-8093871 or email alpha1@rcsi.ie.