The Alpha One Foundation is recruiting a new Chief Executive Officer to lead a small team of dedicated staff and co-ordinate policy implementation, operations, fundraising, financial control, media strategy, communications with and support of Alpha-1 individuals and who will deliver a range of public engagement and advocacy responsibilities.

ROLE OF CHIEF EXECUTIVE OFFICER

The role of the CEO is to lead, develop and manage the Alpha One Foundation, a medical charity dedicated to improving the quality of life of Alpha-1 individuals in Ireland. The Chief Executive reports to the Board of Directors and leads a team covering clinical services, diagnostic, research, and administration functions. The Chief Executive will have overall responsibility for the development, implementation and continual review of the organisation’s operational strategy while leading the delivery of services in full compliance with all legal and statutory frameworks. The remit of the Chief Executive is broad with respect to day to day activities.

Operations and Management

  • Prepare a strategic plan and annual budget for approval by the Board of Directors
  • Operate within the annual budget and ensure management and HR policies are up-to-date
  • Establish and monitor key indicators of the organisation’s impact and financial health
  • Ensure the effective and smooth operation of the services and supports provided by the Alpha One Foundation
  • Lead the Alpha One Foundation staff to ensure they deliver the Board’s priorities and policies
  • Manage the appraisal and development of staff to maximise their potential and use resources to the best advantage
  • Ensure the efficient running of the office

Policy and Representation

  • Represent the organisation in the media and public domain
  • Build relationships with politicians, media, government officials, statutory bodies, voluntary bodies, private bodies, individuals and other external stakeholders including the Alpha-1 Foundation (U.S.) in order to advance the organisation’s aims
  • Maintain awareness of risks and changes in the external environment that affect the organisation
  • Establish mechanisms for listening to the views of Alpha-1 patients

Effective Governance

  • Prepare and provide an annual report for the Alpha One Foundation
  • Supply reports to the board and attend board and sub-committee meetings
  • Ensure the organisation’s staff are focused on achieving its mission and aims
  • Ensure the organisation fulfils its legal, contractual, statutory and regulatory responsibilities
  • Deliver the organisation’s business plan and, if necessary, help the organisation to win contracts from public or funding bodies

CANDIDATE PROFILE
It is desirable that applicants will have a relevant third level qualification in healthcare, business or clinical management as well as a number of years’ experience in a senior management role in a similar organisation. They will have excellent leadership, communications and financial skills as well as the ability to manage an organisation that supports and represents a patient population. They will have a vocational understanding of the ethos of care in the healthcare and charities sector. Experience in medical or scientific research is an additional advantage.

HOW TO APPLY
To apply for this position please submit a copy of your full Curriculum Vitae with a cover letter outlining why you are the right person for this role. Applications must be submitted to Ms. Geraldine Harte, This email address is being protected from spambots. You need JavaScript enabled to view it.. Applications will be treated with the strictest of confidence.

The closing date for application is 5.30pm on Friday, May 5th 2017. For informal enquires about the role you may contact Kitty O’Connor on 01-8093871.

ABOUT THE ALPHA ONE FOUNDATION
Based at RCSI Beaumont Hospital, the Alpha One Foundation is a charity founded in Ireland in 2001 to raise awareness, increase diagnosis, promote research, and improve the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1). Alpha-1 is one of the most common inherited conditions in Ireland. It is a genetic condition that can cause severe lung and liver problems. The Alpha One Foundation aims to increase awareness and improve the treatment of Alpha-1 by:

  • Conducting the National Targeted Detection Programme for Alpha-1
  • Promoting early diagnosis of Alpha-1 individuals
  • Providing comprehensive patient support
  • Co-ordinating the National Alpha-1 Registry
  • Providing access to clinical trials for emerging therapies
  • Participating in scientific research and development
  • Supporting the National Alpha-1 outpatients clinic at Beaumont Hospital
  • Promoting health policies that improve the quality of life of Alpha-1 individuals in Ireland

 AOF activities

What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test. 
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha One Foundation provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. For more details ring 01-8093871 or email alpha1@rcsi.ie.