We are delighted to showcase our new educational film on Alpha-1 which was officially launched at the Annual Alpha-1 Conference on October 7th. Funded by an educational grant from the Health Research Board and developed in conjunction with COPD Support Ireland, RCSI, and DCU, we must give very special thanks to the O’Donnell and Gormley families, Anne Gormley and Orla Keane. 

Filmed on location in Donegal, Kildare, RCSI Beaumont Hospital, and DCU, the film tells the story of John O'Donnell from Manorcunningham, a talented poet who developed lung disease due to Alpha-1 and tragically passed away at the age of 26.

WindowToMyWorld

John's sister Anne Gormley speaks in the film about her brother and how she has been diagnosed with COPD caused by a combination of Alpha-1 and smoking. Anne talks honestly about the importance of getting tested and the devastating effects of cigarette smoke. Professor McElvaney, an expert on Alpha-1 at the National Centre of Expertise for Alpha-1 Antitrypsin Deficiency in Beaumont Hospital, discusses the genetics of Alpha-1 and how it is passed down through families, its high prevalence in Ireland, and how research is leading to new treatments for the condition.  

WindowToMyWorldbeach 

 The film opens and closes with poetry written by the late John O’Donnell and if you would like to buy a book of his poems please visit here (http://eprint.ie/Window-To-My-World). All proceeds go to the Alpha One Foundation. As November is Alpha-1 Awareness Month, the timing of our film is particularly appropriate. Please share this powerful film with as many people as possible and get people talking about Alpha-1! 

What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test. 
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha One Foundation provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. For more details ring 01-8093871 or email alpha1@rcsi.ie.