Want to get EDUCATED? Want to get INVOLVED? The IPPOSI Patient Education Programme is now open for applications. This is a 6-month blended-learning education programme, the first of its kind in Ireland, and is being piloted from September 2017 to March 2018 with a number of topics related to healthcare and the development of new treatments.

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The pilot programme is being led by IPPOSI in partnership with a number of education partners and will cover the following topics:

  • Understanding Clinical Trials – delivered by the University College Dublin Clinical Research Centre
  • Regulatory Affairs, Medicinal Product Safety, Pharmacovigilance and Pharmacoepidemiology – delivered by the Health Products Regulatory Authority (HPRA)
  • Health Technology Assessment principles and practices – delivered by the Dept. of Medicine & Therapeutics, Trinity College Dublin, in association with the National Centre for Pharmacoeconomics (NCPE)

All of the information you need to complete the application - including a Guide for Applicants, and a link to the online application form - are available on the IPPOSI website here. The closing date for applications is 5pm on Friday, June 30th 2017.

There is a webinar for those interested in applying taking place this coming Monday, 26th June, from 2 - 3 pm. This will cover an introduction to the course and a Q&A.  Register here

For more information about what IPPOSI does visit IPPOSI.ie

The Alpha-1 Action Group are holding a protest at the gates of Dáil Éireann, Kildare Street, Dublin 2 tomorrow Wednesday, May 31st at 12.30pm. The protest is to urge the Government to fund the life-changing Respreeza therapy as soon as possible. Calling on all those affected by Alpha-1, their families, and friends to attend on the day to support the group and this important cause.

The Alpha-1 Action Group are a group of Alpha-1 patients campaigning for Respreeza to be made freely available in Ireland for the treatment of emphysema caused by Alpha-1. If the life-changing Respreeza is funded it could benefit up to 60 patients with Alpha-1, also known as genetic emphysema.

The Dáil Éireann protest is being organised by the Alpha-1 Action Group & is supported by the Alpha One Foundation.

For Alpha-1 Action Group updates check out Facebook https://www.facebook.com/A1PRespreeza/ and Twitter https://twitter.com/a1_action.  

JosephineMcGuirk

AnnORourke

OrlaKeane

GerryFinnerty

BrendanGallagher

JohnnyHannan

The Alpha-1 Action Group are holding a protest at the gates of Dáil Éireann, Kildare Street, Dublin 2 on Wednesday May 31st at 12.30pm.  The protest is to urge the Government to fund the life-changing Respreeza therapy as soon as possible.  Calling on all those affected by Alpha-1, their families, and friends to attend on the day to support the group and this important cause.

The Alpha-1 Action Group are a group of Alpha-1 patients campaigning for Respreeza to be made freely available in Ireland for the treatment of emphysema caused by Alpha-1. If the life-changing Respreeza is funded it could benefit up to 60 patients with Alpha-1, also known as genetic emphysema. 

The Dáil Éireann protest is being organised by the Alpha-1 Action Group & is supported by the Alpha One Foundation. 

For more updates on the Alpha-1 Action Group check https://www.facebook.com/A1PRespreeza/

 

JosephineMcGuirk

 

 

What is Alpha-1 Antitrypsin?
Alpha-1 antitrypsin is a vital protein produced by the liver to protect the lungs. It provides protection from the harmful effects of infections and inhaled irritants, particularly tobacco smoke. It can be easily measured by a simple blood test. 
What is Alpha-1 Antitrypsin Deficiency?
Alpha-1 antitrypsin deficiency (Alpha-1) is a genetic condition which, after cystic fibrosis, is the commonest genetic disorder in Ireland. It severely affects more than 15,000 people, with another 250,000 carriers also at risk of lung and liver disease on the island of Ireland. It is a proven genetic risk factor for chronic obstructive pulmonary disease (COPD).
How Do I Get Tested?
The Alpha One Foundation provides free testing for Alpha-1 as part of a national screening programme which is funded by the HSE. For more details ring 01-8093871 or email alpha1@rcsi.ie.